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Lucy's mom - August 14, 2009 - 12:52 am

Hey Christina!
I did find it extremely difficult and overwhelming in the beginning to break those zymies open, pour into applesauce, feed her the stuff just to get her on the boob and go back to sleep! At 3 in the morning, the last thing a new tired mom wants to do is prepare drugs for her newborn! With no help from Lucy's dad I felt an extreme weight crashing down onto my shoulders and didn't know what to do. The first 6 months were the hardest, with becoming a new mom, breastfeeding, trying out new drug schedules and CF, it was over the top nerve racking! On top of it, there was a feeling of disappointment because my plan had been to cloth diaper Lucy but living in an apartment complex at the time with NO washer or dryer I felt it would be nearly impossible to get anything done (especially with up to 8 poops a day!)

I have a feeling that Nathan, to quit the boob at 6 months, was probably on strike or most likely teething. It's so wonderful that you nursed AT ALL and for a whole 6 months! All the immunities and nutrition he received just in that time was so very necessary and beneficial for both of you! There has to be a study of CF formula babies vs. CF breastfed babies. I really think the results would be astonishing! Who knows though…maybe breastfeeding has gone to my head and I'm a little jaded…LOL I'm pretty optimistic!

Lucy's clinic (nutritionist) had suggested at one of her appointments that we may need to supplement with formula to get more calories in her and I flew through the ceiling! After that, they all realized how passionate and determined I was to exclusively nurse. They have never questioned me again! She was 7-8 months at the time and I was making her baby food and was able to add calories to that instead of supplementing.

I know all the stress we go through being CF mamas can be overwhelming and frightful at times but then I look at Nathan's pictures and read your blog updates and see Lucy fighting CF with a smile everyday and I realize it's all worth it. That one smile, one giggle, Lucy asking to nurse at the most inopportune times! :P We were MEANT to be their mommies!! No one could do it better than us!!

Take care and keep in touch!
~Kacie AKA Lucy's mom

Diana - August 23, 2009 - 8:54 pm

Hello Christina, your son is beautiful and you are an inspiration. I would like to request to use your blog in my class. I am a pediatric nurse educator and I have found that personal stories make it easier for students to connect. I would understand if you would prefer that I don't, but I wanted to ask.

Thank you no matter what your response is..
Diana Breed, RN MSN
Mesa Community College
Mesa Arizona

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