Monthly Archives: May 2009

fun in the sun garage

It is a sunny 75 degrees in New Jersey right now with a frost advisory in effect from midnight until 7 am tomorrow morning. Strange, isn’t it? So before the frost settled in, we decided to enjoy… …a little fresh air and indirect sunshine… in the garage. If it were not for the antibiotic induced…

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scratch that

You know this post, the one I published a mere hour and a half ago? You can know forget about it. Since then I have sat through an hour and a half worth of screaming and coughing. All the Tobi I have painstakingly tried to get my little boy to inhale has been forcefully expelled…

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sending the canary into the cave

A short update on the vomiting, Nathan only vomited once in the past two days. He made that one time really count though by regurgitating the reddish Jello tinged contents of his stomach onto our light whitish colored carpet. Now for the not so short update on the vomiting. As I have already mentioned a…

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CF T-Shirts: don’t let time pass you by

Get ‘em while they are hot! There are still a few sizes remaining. Hanes Heavyweight T-shirt in Light Blue I still have the following sizes and quantities1 Youth XL4 Adult Large3 Adult XL If you would like to order a custom designed CF T-shirt to support Nathan, please include: Your name Address Size(s) $20 per…

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VX-770, a CF therapy enters clinical trials

Exciting news in the world of Cystic Fibrosis!! VX-770, a drug aimed at treating the underlying cause of cystic fibrosis, started Phase 3 clinical trials. This trial will determine if VX-770 will help CF patients with several different mutations — including the most common mutation — DeltaF508. DeltaF508 is the mutation that Nathan inherited from…

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