Monthly Archives: January 2010

Chronically Late

Being late makes me sick to my stomach. I used to always be right on time if not a little early but now I am chronically late, and there really isn’t anything I can do about it. I am supposed to be at a bridal shower an hour away in one hour, so it looks…

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not napping

I am pretty sure Nathan is just not going to nap today. I don’t know why I get this feeling but maybe it is all the noise coming from his bedroom at this moment. That’s what I get for doing his treatments a half hour early. Normally he falls fast asleep when I start pounding…

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The Vest for Airway Clearance

Yesterday I announced the BIG NEWS that Nathan is getting his Vest. I assumed that everyone knew what the Vest was but just in case you don’t know how big this is for us and for Nathan, I thought I would dedicate a post to it. The Vest System would replace the need to perform…

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Time to put my mind at rest…

…Nathan is finally getting his Vest!! Can you tell how excited I am? I feel like jumping up and down with joy. If I only had more energy. Instead I will tap away at the keyboard. Tap, tap, tap….Yippee! Hooray! I signed away my life (aka. the consent form) without thinking twice and Nathan’s Vest…

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Nathan’s Current Medications and Treatments

Last updated: 1/27/2010Age: 17 monthsGene Types: Delta F508 (∆F508) and 711+1G→T Albuterol: 2 times a day, every 4 hours as neededHypertonic Saline: 2 times a dayCPT: 2 times a dayTOBI: 2 times a day (28 days on, 28 days off), currently offBactrim: currently offCipro: currently offCreon 6: 4 capsules per 8 ounce bottle, 2-3 per…

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