Monthly Archives: April 2010

Experiencing Ikea (our day in videos)

Ever get that feeling that you just have to get out of this house? Well I basically get that feeling everyday but today Jay was home from work and decided that he needed to get out. So we quickly decided it was time to introduce Nathan to Ikea. We haven’t been to Ikea since last…

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23 weeks pregnant

Technically 23 weeks and 1 day pregnant but I took this belly photograph yesterday. I am still feeling pretty comfortable in the in between stage of pregnancy, no longer nauseous and vomiting and not yet incredibly enormous. I started out “overweight” with this pregnancy which is a far cry from my first pregnancy where I…

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Finally FOR SALE: Nathan’s 2010 CF T-shirt

Great news! Since I did not change the design on the front of the t-shirt since last year, the screen printer does not have to charge me screen set up fees for the front! Last year the t-shirts were $20 per shirt and I was overwhelmed by the fantastic response. This year I managed to…

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Two new additions…

…to Nathan’s current treatment regimen – Prevacid and Miralax. The Prevacid (15 mg) he will take every night before bed for at least the next 90 days for reflux. He has been waking up crying and swallowing extremely hard. His doctor wants to see if this is reflux related. Today we began giving Nathan a…

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Nathan’s Current Medications and Treatments

Last updated: 3/27/2010Age: 20 monthsGene Types: Delta F508 (∆F508) and 711+1G→T Albuterol: 2 times a day, every 4 hours as neededHypertonic Saline: 2 times a dayVest: 30 minutes 2 times a dayTOBI: 2 times a day (28 days on, 28 days off), currently offBactrim: currently offCipro: currently offCreon 6: 4 capsules per 8 ounce bottle,…

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