As I briefly mentioned before, we’ve been having issues with purchasing Pediasure out of pocket. The bottom line is: Nathan currently needs Pediasure. All effort to transition him to a diet consisting primarily of solid food is in vain. And I’m not messing around any more with cutting him off of Pediasure or battling with…
Category Archives: Cystic Fibrosis…or failing miserably. I’ve been told that the full moon tonight will be a supermoon, appearing unusually large and bright. I’m blaming my children’s behavior on this occurrence. Although there may be no correlation between lunacy and lunar phases, my mother in law, a psychiatric nurse begs to differ. I’m praying with the passing of… This morning both grandpas came over to enjoy pancakes cooked by Chef Nathan and to encourage him to eat. In the end after much coaxing, he ate an entire big pancake with butter, syrup, cinnamon which he calls “pep” and confectionary sugar which he just calls “powder”. Actually, scratch that. Although that is his normal… Nathan had his routine checkup at cf clinic yesterday. The good: Nathan swallows his enzymes whole, 2 at a time. Nathan is doing terrific with development. Potty training, speech, etc. He continues on a relatively healthy streak. His cough is normal, lungs sound great. He keeps up with other kids his age (preschool, YMCA sports… Feeling regret tonight. Feeling like we were too hard on Nathan last night, not fully understanding how he feels. Sending him to bed hungry, without his evening bottle, because he wouldn’t try peanut butter and fluff. Obviously pediasure sits well with him. He also had all of his Skylanders taken away temporarily for not listening… 
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